Policy is an imagining of the future. This is one of the core domains of all artists and an activity that is fundamentally cultural. To be sustainable, health and community development policies must find ways to become embedded in local cultures. Project HEAL: Kentucky Lab is comprised of two distinct components:
- Word To Wellness, a podcast created by a poet exploring the rural-urban dynamic of health access in Kentucky
- Medical Mistrust, a study created by a medical student exploring trust between two adjacent communities. One is a health sciences campus. The other is a low-income Black community.
Both take unique approaches to exploring the roles of trust and language in creating healthy, just communities.
Word to Wellness: Health Access in Kentucky from Smoketown to Jackson is a podcast that uses poetry, first-person interviews, and media from YouTube to develop new insights into Kentuckians shared cultural narrative around health access. It asks, “How does language impact health?” The podcast is focused on Kentucky's oldest African American community, Smoketown, and the rural, Appalachian, white community of Jackson, Kentucky that was the focus of the New York Times best-seller, Hillbilly Elegy. The project pairs poetry with policy to demonstrate how the two inform each other, driven by the quote from scholar Anthony Black, "Artistic revolution manifests when people can’t feed their children."
EPISODE 1: The Role of Community (Release Date: October 4, 2017)
EPISODE 2: Medical Mistrust (Release Date: October 4, 2017)
EPISODE 3: Economic Mobility (Release Date: November 1, 2017)
EPISODE 4: Transportation (Release Date: November 1, 2017)
BONUS EPISODE: Acts of Kindness
ABOUT THE ARTIST
Word to Wellness was created by Mackenzie Berry. Mackenzie is a poet and policy intern at IDEAS xLab. Originally from Louisville, KY, she is now a full-time artist scholar in the First Wave Hip Hop & Urban Arts Program at the University of Wisconsin - Madison majoring in English - Creative Writing with a Certificate in Afro-American Studies. Additionally, she is a Wisconsin Idea Fellow, Center for Public Humanities Undergraduate (HEX-U) Fellow, and a Sophomore Research Fellow. In 2015, she founded the 501(c)(3) nonprofit organization Young Poets of Louisville. Mackenzie has served as Poet Laureate of Thrivals 8.0 of the Louisville IdeaFestival and has been featured on NPR for her work. She creates narrative work, written or otherwise.
Word to Wellness is produced by Theo Edmonds and IDEAS xLab.
Episode 1 - Smoketown Family Wellness Center posted by Charlotte Stites - https://www.youtube.com/watch?v=R9AallZTZ20&t=41s. "A Blessing for the Feast of All Poets" by Pauletta Hansel - https://paulettahansel.wordpress.com/
Episode 2 - Nikky Finney "Migration Portraiture" posted by the Museum of Modern Art (MoMA) - https://www.youtube.com/watch?v=BkX1UX5ili0&t=54s
Understanding Medical Mistrust in Smoketown Community Members Compared to Healthcare Providers
Besides environmental and socioeconomic factors that contribute to lack of access and underutilization of care, trust and confidence in a medical provider and healthcare organization is important. Medical mistrust stems from historic events and institutional racism that perpetuate discrimination in society, causing the disbelief of individuals in a homogeneous healthcare system and its providers. This contributes to underutilization of healthcare and various health inequities. To address the gaps in access to care in the Smoketown community it is important to understand the perception of medical mistrust by administering the Medical Mistrust Index (MMI) to Smoketown residents and local healthcare providers.
This will allow investigators to compare how people within the healthcare system perceive it and how clients of the healthcare system perceive it. Once results are analyzed a focus group will be facilitated where participants will create six-word memoirs exemplifying their experiences in healthcare. These memoirs will be shared with the Smoketown community and local healthcare providers. The goal of this project is to support the healthcare system in creating a new approach in building trust with the community they serve.
About the Study
IDEAS xLab intentionally crafts an approach that puts artists working together with healthcare professionals. Beginning Spring 2017, we are excited about a new partnership that will activate new thinking around health equity and social justice by pairing artists together with medical students at the University of Louisville in The Health and Social Justice Scholars Program.
This program provides a unique opportunity of educating professional and doctoral students in an inter-professional manner to produce high quality scholarly activities related to health equity, health and healthcare disparities, social justice, and healthcare innovation with the goal of benefitting underserved and disadvantaged populations. The program is comprehensive, providing scholars conceptual learning modules, research experience, mentoring, service learning, and professional development. The program is managed by the Health Sciences Center (HSC) Office of Diversity and Inclusion with high collaboration with Schools of Dentistry, Medicine, Nursing, and Public Health and Information Sciences, as well as community partners like IDEAS xLab.
Mallika Sabharwal, UofL Social Justice Scholar with IDEAS xLab
As an undergraduate student at the University of Florida, Mallika Sabharwal volunteered at the Equal Access Clinic, a student-run free clinic that provided medical care to underinsured communities in North Florida. Patients were often uninsured, homeless, or undocumented immigrants. Learning how the clinic addresses non-medical barriers she designed a social services resource manual for volunteers to refer to patients, like local GED classes and federal aid program enrollment. Before starting medical school, she worked at the Chicago Department of Public Health through the CDC’s Public Health Associate Program. In Chicago, Mallika worked in the school-based sexually transmitted disease program which educated and tested high school students on the south and west sides of the city, areas of high morbidity that also lacked health care professionals.
Currently a second year medical student at the University of Louisville, Mallika is an active member of Students for a National Health Program, advocating for equitable and affordable healthcare for vulnerable populations.
LaVeist T, Isaac L, Williams K. Health Services Research. Mistrust of Health Care Organizations is Associated with Underutilization of Health Services. December 2009. 44(6): 2093–2105. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2796316/
Ball K, Lawson W, Alim T. Journal of Psychology and Behavioral Science. Medical Mistrust, Conspiracy Beliefs & HIV-Related Behavior Among African Americans. December 2013. 1 (1). http://jpbsnet.com/journals/jpbs/Vol_1_No_1_December_2013/1.pdf
LaVeist T. Hopkins Center for Health Disparities Solutions Project. Measuring Trust in Health Care: Medical Mistrust Index 2.0. Retrieved June 16, 2017 from http://www.jhsph.edu/research/centers-and-institutes/johns-hopkins-center-for-health-disparities-solutions/Projects/MMT.html